The cupboard full of cream
Monday 29 May 2017
Thank you
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So Ichthyosis Awareness Month 2017 is now over but for us and many others, our life with ichthyosis continues. The aim of starting this...
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Hopes and dreams for the future
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When we had Alfie everything kind of got flipped on its head. Our world sort of got knocked off kilter and we weren’t sure what direction...
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How does it feel
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So many people ask me questions about Alfies skin and ask me things like ‘how does it feel’ and ‘will this hurt him’ or say things like ‘th...
Friday 26 May 2017
A post from Granny Granny Gran
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Todays blog is a guest post from my mum..... My name is Karon, Catherine’s Mum and Granny to Alfie or Gran when he wants to tease me - ...
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Thursday 25 May 2017
Moving on...to school
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Alfie is 4 now and due to start primary school in September this year. The last 4 years have gone so fast and I’m not sure I am prepared f...
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Shhhh...talking about difference
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Following on from the blog about emotional wellbeing I decided to write todays post. So many people (mainly other parents) ask how they sh...
Its only skin 2: Emotional wellbeing
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With a skin condition much of the focus is on the physical aspects and the things you can actually see but we must not forget that mental h...
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